JUNE FEATURES

Learn About Supported Decision-Making

Supported decision making (SDM) is a tool that allows people with disabilities to retain their decision making capacity by choosing supporters to help them make choices. The supporters agree to help the person with a disability understand, consider, and communicate decisions, giving the person with a disability the tools to make his or her own, informed, decisions. (ACLU)

Dravat Syndrome Awareness Day June 23

Dravet syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare form of intractable epilepsy that begins in infancy. While seizures persist, other comorbidities such as developmental delay and abnormal EEGs are often not evident until the second or third year of life. Current treatment options are limited, and constant care is required throughout the lifetime.

Where Do Human Rights Begin?

“In small places, close to home -- so close and so small that they cannot be seen on any maps of the world. [...] Unless these rights have meaning there, they have little meaning anywhere.

Without concerted citizen action to uphold them close to home, we shall look in vain for progress in the larger world." Eleanor Roosevelt